Wednesday, 2 April 2014


I'm sat in my pyjamas at my desk (it's currently 6pm on Tues eve at the moment!) and I'm really glad to be relaxing. The kids are with their dad, and R is on a night out... so I have an evening to myself.

My plan is to catch up on a little bit of cleaning - the carpets seriously need hoovered! - and then I'm going to have a bath I think and do some reading. Bliss!!

The thing is I'm seriously wiped out. I'm actually physically drained. I came home from work the other day, had a very quick dinner that R kindly cooked, and then I went straight to bed and slept right through to morning-time.

In my head I was blaming the children (they are full on!) but the more I've considered it, it's probably related to my Crohn's Disease.

I've been having some on/off symptoms now for a number of weeks and I'm fed up with it.

I admit I've been previously rubbish at taking my tablets (I take azathioprine tablets daily, a strong immunosuppressant) but I've been much better this year and yet I still don't feel great :-(

What also makes it worse is that I don't look sick.

Thankfully my blood results came back ok so surely that means nothing serious is going on, but that doesn't explain the waves of nausea, stomach cramping, aching joints and other Crohn's symptoms I'm having to deal with just now. I know I shouldn't complain because my symptoms are mild compared to others out there with IBD, but I'm used to being well so feeling this way is out of the norm for me.

I've had the disease since 2004, this is my 10 year anniversary! I came home from work recently to find an interesting looking padded envelope... hmmmm, what could it be!? I quickly opened it to find some sachets of Moviprep. Delightful! I have a colonoscopy booked for the end of May. Something to look forward to?? Perhaps not! The last two colonoscopies I had were horrific. I remember lying on the bed screaming in pain and the nurses trying to manipulate my bowels to get the tubing round. Really dreading having to go through it again.

However it will show how the disease is progressing, which will be interesting given that my last colonoscopy must have been 8 or 9 years ago now.

I've also been having some issues with my hands... and my GP has diagnosed Raynaud's Disease (a condition that affects blood supply to the fingers and toes). Great! It's apparently associated with Crohn's. Thankfully it's intermittent (my fingers go white and I lose the feeling in them, not so nice!!) and I'm looking forward to the warmer weather arriving in Glasgow which should make a big difference!  

Anyway, I'm sure there'll be more on the colonoscopy when the time comes. I've already arranged for the kids to have a few extra nights with their dad. Looking after two kiddies and trying to cleanse one's bowel are not a good combination! 


  1. Hugs. I hope you feel better soon xx

  2. I have Reynaud's too! I've always had it, for as long as I can remember. Snap - it's not fun !x


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